Making Peace with a Body at Odds with Your Life Goals
- At August 05, 2018
- By Jeannine Gailey
- In Blog
1
When Your Body’s at Odds with Your Life Goals
This last week I haven’t been able to do much, by which I mean, move, shower, or leave the house. I got an infection which triggered my MS symptoms and my body does not want to work. It does not want to eat, sleep, or move around properly. I feel nauseous all the time. I can’t concentrate. My legs give out from under me at random times. I’m so frustrated because, yes, my body is at odds with my life goals.
Friends who have perfect health, good for you. Please enjoy it. Everyone else, what can we do? Yesterday a friend was reading downtown at Open Books, but instead of being there, I was sleeping. It was a perfectly beautiful day outside, which is saying something for Seattle – 75 degrees and sunny. My flowers were blooming. The hot air balloons went up and down in the morning and evening. I was surrounded by beauty. I just couldn’t do anything with it.
How to Accept Your Losses
I’ve always been an A-type, goal-oriented human. The problem with that is when you can’t achieve your goals, do you consider yourself a failure? Do you forgive your body for betraying you? I think the trick is to enjoy and appreciate the moments when you can do things, and the rest of the time, you have to be okay with the fact that your body isn’t going to work all the time. Which is tough. We live in a society that values doing things, not being things. I used to, for instance, earn good money as a tech-writing manager. Not anymore – I’m lucky to break 15K a year as a writer and editor these days. (Just being realistic, people. This was also true when I was working as an adjunct!) Am I worth less as a person because I make less money? I’m still writing. I still send work out to be published, just maybe not as fast. The poet in me says: this downtime is allowable. It does not make you less of a poet. But the A-type, goal-oriented part of me says: what are you even good for these days? It is angry that I’m not able to do even simple things every day – go to a bookstore, or a garden, or hike by a waterfall – that bring me joy. I can’t socialize every day anymore. Those feel like losses to me. I love my friends, my spouse, my garden and my cats, all of whom have put up with me in my new, broken condition – one that is fragile, and somewhat unpredictable. I need to be able to accept my new condition as well.
This has made me think about Emily Dickinson, who was home-bound for most of her adult life. She didn’t get out much, although single women couldn’t do as much in her day even if she had been totally well, which some historians thinks she was not. She did have a fabulous garden and greenhouse (concreted over by the next owners of that property, by the way, to make tennis courts – the shame!) She famously wrote a poem about what might make a life worth living (“If I Can Stop One Heart From Breaking”) so I think she also struggled with, having not attained publication or fame during her lifetime, and not getting married or having a family (women in those days didn’t have much chance of having any type of career) seeing herself as a failure, coming up with coping mechanisms for not being able to achieve her goals. “Victory Comes Late” is one of my favorite of her poems, because it deals with bitterness and loss from the perspective of achieving goals, but late and at a time when it no longer brings a thrill. (Did she foresee her own post-life fame, I wonder?)
Moving Forward
So, how does one move forward with this? I know that I have good days and bad days, and I’ve had a pretty bad, say, month. I know that MS can be worse in the summer, and that has definitely been the case for me. So I have to roll back some of my expectations. It’s beautiful outside, but I’m lucky that I can enjoy some of that from my deck, where I can watch over my flowers and birds (and occasionally, rabbits and deer.) There are a lot of things I’d like to do – take a day trip up to Port Townsend, go downtown more often to see art or poetry readings, or just see the rose garden at the Woodland Park Zoo, or the lavender fields. I miss those things. But I have hope that I’ll have more good days again, that I’ll get this MRI on Tuesday (checking my brain and spine for more lesions) and see my neurologist and maybe those will give me some answers. I pray (and also donate money that support this cause) that they are going to find an MS cure soon. They are working on new drugs – because most of the ones that exist, sadly, don’t work very well (40 percent or less effectiveness, which is not great) or have terrible side effects – like death, or cancer. I hope they get some new drugs soon that help people like me that struggle to do their everyday things. I’m working hard to find a new primary care doc that doesn’t just blow me off or get overwhelmed by my complexity. In the meantime – I will continue to do the things I can. I will try to forgive my body on the days when it’s hard work just getting out of bed. I still have goals – writing, submitting, getting out in the world – even trying to edit or review books when I can – I just have to accept that some of the time, my goals have to be smaller and more manageable, or not depend on the “zing” of accomplishment to feel okay about my life. I have to be okay with my hummingbirds seen from a window, the undependable nature of flowers, blooming or getting eaten by deer, variously. The hot air balloons a symbol in the distance of lightness and movement, of hope.
New Review of PR for Poets, Hot Streaks, Hot Air Balloons, and Blood Moons
- At July 31, 2018
- By Jeannine Gailey
- In Blog
4
Hot Streaks, a New PR for Poets Review and Blood Moons
Hello from hot and muggy Seattle, where our Blood Moon looked fantastic because of the fire pollution up and down the West Coast, and of course, fire pollution from Siberia (!) We are supposed to get a break in the hot weather soon, which can’t come soon enough for me. I’ve started to dream at night about Antarctica trips and outer space.
Thank you to Carey Taylor at The Poetry Department blog for this brand new review of PR for Poets! If you haven’t got your copy of PR for Poets yet, summer is a great time to plan your promotion for the rest of the year.
Hot Air Balloons, Rejections and Slowing Down Time
I’ve been rendered house-bound for a while (except for doctor’s visits) with severe MS symptoms during the hot streak and a sprained ankle, so in the meantime I’ve been dreaming of escape, taking pictures of hot air balloons, our beautiful eerie moons, and birds. I’ve also been working on revising my sixth book manuscript. I only have it out to a few places, but received a rejection yesterday. Part of the job, I know, but still, discouraging. I’ve been searching for a good new primary doc, too, without success (the last one wasn’t afraid of my complexity, but said I’d do better with a doctor who was connected to the major medical databases and a major hospital. I guess she’s right.) Rejection all around! And meanwhile, the muggy, airless heat wave continues.
During the evenings when it’s a little cooler I’ve been watching the hot air balloons that rise and fall right around our house. I’ve also had plenty of time to watch my flowers struggle with the sun, the birds fighting over seeds and hummingbird feeders, and discover a new flowering tree in the back yard I’d never noticed before. The day we had a nearby fire, this flicker perched on top of one of our birch trees and just sat, beak in the air, for over an hour. So strange. Time moves slowly when you’re not feeling well – I’ve been trying to fill the time with reading encouraging writing books, watching stand-up on Netflix (I recommend “Elder Millennial,” if for nothing else than the ten minute bit that I swear was inspired by the Melusine myth, which I wrote about in my first book, Becoming the Villainess, in the poem “The Monster Speaks: It’s Not So Bad”) and, well, lots of sleep and fluids. Not the most glamorous summertime activities.
I am wishing us all less fire, fewer heat waves and rejections, and enough time to enjoy the good things about summertime.
- Blood Moon with lens flare
- Hot air balloon right above me!
- Hot air balloon sinking, with crows
- newly discovered tree
- Hot air balloon sinking behind our trees
- Flicker during the fires, waiting
Heat Waves and Poetry Scandals, Poetry Writer Dates, and Sending Out Work in the Summer
- At July 26, 2018
- By Jeannine Gailey
- In Blog
1
End of July Heat Waves and Poetry Scandals
How are you holding up in the heat? We’ve had literal weeks of 90 degree weather here in Woodinville, which is welcome to leave any time (although it’s not supposed to get cooler for a while.) I love being outside but right now even my sunflowers are wilting from too much sun!
I’ve been laying a little low while dealing with MS symptom misery, but not low enough to avoid reading about scandal after scandal this week! A woman scams the literary world (and I mean, why would you target the literary community? It’s a community without a lot of money. Go pick on a richer group! And she was particularly targeting feminist writers. Did I mention I think I was Facebook friends with her at some point in the past?) And another literary agent was just accused of fraud, even writing fake letters with offers from presses to writers she worked with. Yikes! Writers beware, indeed.
And a terrible poem that offended about just about every group that exists was published and that also caused a scandal. (Note: Persona poetry is not a crime, but maybe try to avoid taking the identity of someone who might be underrepresented…Also, it was not a good persona poem because it relied too much on obvious cliches…The editors of the magazine involved are really nice, hyper-socially-aware writers, which begs the question of…well, hey, even good editors have off days…) I tried to avoid getting too involved in the scandal and gossip maelstrom on Twitter etc. It is funny how many people would rather get together and hate on a poem than ever ever talk about something positive about a different poem. Ah well. Such is social media. Which brings me to the importance of in-person writer time!
Poetry Writer Dates
Much more uplifting – real life time spent with real life writers! Spent a whole lovely day with Kelli Russell Agodon talking about our latest poetry manuscripts, the poetry world, and, bonus, I got a 20-minute Instagram tutorial on hashtags (which I needed because I am still so clueless on Instagram.) Glenn put out strawberry cupcakes and sparkling rose from the winery next door and it was just so nice to relax and spend time with another writer one-on-one. Plus, I was able to tackle my manuscript revisions the next day, so now I feel like I have a better, more complete version of my manuscript to send out.
Glenn and I drove Kels down to the Edmonds ferry and hung out on the beach to watch her leave. The sunset was beautiful and the breeze off the Puget Sound was perfect.
- Me and Kelli Russell Agodon -Poetry Friends!
- Sunset on the beach
- Edmonds Ferry at sunset
Sending Out Work in the Summer
- Hot Air Balloon, Woodinville Morning
- Me and Glenn in roses and lavender at Lake Washington in Kirkland
- More hot air balloons
Yes, go out and enjoy the flowers and good things the summer offers that the rest of the year doesn’t. For me, I love watching the hot air balloons go up and down at sunrise and sunset around Woodinville, and getting to watch gardens at their loveliest – right now, the lavender and roses are loving the heat. Yes, of course, summer is the perfect time for taking the chunks of downtime to revise a manuscript or even a few poems and stories, a great time to rest and restore and create, but did you know it’s also a really good time to send out work? Not as many places are open to submissions, true, but the ones that are get fewer submissions because people don’t schedule in a ton of submission time this season. A few great presses are open for submissions right now. Plus, more writers have the endorphins from vacations, time spent outside, and sunshine to help them deal with rejections. Check out Entropy’s list of place to submit during the summer months…It’s easy to let a whole month slip by without sending out work. Make sure you send out at least once before July ends!
Happy end of July! Wishing us slightly cooler temperatures and plenty of ice cream!
Goldfinch and Sunflowers, Thanks to the Coil, and Celebrations
- At July 14, 2018
- By Jeannine Gailey
- In Blog
1
July, the Season of Goldfinch and Sunflowers, The Coil, and Revelations
Happy Mid-July! It’s the season of sunflowers and goldfinch appearances, my 24th anniversary, my husband’s birthday, and a summer bug that kept me down a bit last week.
But I am happy to thank The Coil and Leah Angstman for including my poem “When It All Falls Apart” in this week’s literary roundup (which includes many amazing literary stars.) Check it out!
Late edition: Thank you to Colleen Anderson for including my poem Revelations in the latest issue of Eye to the Telescope. (You’ll need to scroll down a little bit to find it.)
In other news, we had a low-key celebration of our anniversary, but I wanted to post a picture. Glenn and I bought a “poetry chandelier” a few years ago and every time he puts up poems from my newest manuscript, the book seems to get taken.
Poetry Chandeliers, Anniversaries and Birthdays, Taking a Little Time to Celebrate
So for our anniversary this year, he put up poems from my latest manuscript along with fancy cherry blossom paper. It casts a blueish glow over the room which is nice when it’s 90 degrees (whew!) outside. Now it’s only a matter of magic and time til a publisher picks it up, I’m certain!
Here’s what it looks like.
So I’ve been mostly resting, avoiding the heat, and writing and submitting (painstakingly slowly) and working on revising my book manuscript. Summer always seems to go by too quickly and at the same time too slowly? How is it already mid-July?
July is a good time to get together one-on-one with friends, to appreciate the little beauties around us, to maybe make peach ice cream or learn one more grill-out recipe to share. We just celebrated Glenn’s birthday with my little brother and sister in law drinking cider, eating grilled-duck tacos and spent the end of a warm evening watching the hot air balloons going up in Woodinville. The goldfinch showed himself off too.
- Glenn’s birthday party
- Goldfinch on sunflowers
- Even more goldfinch!
So, be sure to enjoy your summer, be sure to enjoy the little things, take advantage of downtime to do things you forget to do during the rest of the year – watch the birds, water your garden, drink something cold outside. Read some poetry and be kind to your little poems as you revise and refresh. It’s a good time to go a little easier on ourselves.
Poets in the Park Report, Summertime Revising Season, and MS Energy Conservation
- At July 08, 2018
- By Jeannine Gailey
- In Blog
2
Summer is the Season of Revision
Hope you all had a good holiday week. I spent a good deal of the holiday sick as a dog with an upper respiratory thing, which meant we stayed home and listened to locals shooting fireworks from noon to midnight. I took the opportunity (as I was not able to sleep much) to revise my sixth manuscript again. Last time I went through it very carefully and didn’t find anything to cut. This time I was like, “Why are these six poems even in this manuscript” and found the same poem in two different places. Sigh. But the good things about the relative downtime of summer is that it releases the time for revision, which I don’t know about you, but I usually need to do quite a bit of.
On the plus side, my roses are finally flourishing now that the deer have for some reason stopped eating them. I surrounded all of them with edible herbs, like thyme and rosemary, which seems to have helped deter the cute but pesky flower-eaters. The hummingbirds are still going crazy now that the dry season has finally started – I did manage to catch a rainbow a couple of days ago during a brief storm. I love rain in the summertime. Where I grew up in Tennessee, there was a brief rainstorm almost every afternoon in the summer. And it was always wonderful – you could smell the air getting cleaner and the flowers being happy.
- Hummingbird at feeder
- Rainbow
Poets at the Park in Redmond – a Delight
- Natasha Moni, Risa Denenberg, adn me
- Natasha reading
- me reading a poem of resistance and resilience
I managed to cold-medicine myself up and make it to my PR for Poets talk and reading with Jack Straw at the yearly Redmond poetry festival Poets in the Park. It was great opportunity to reconnect with old friends (especially a few I hadn’t seen in a while) and hear poetry and sell some books. The PR for Poets talk was crowded and people asked a lot of really good questions. The reading part – I read some new poems as well as a couple from Field Guide to the End of the World on the subject of resilience seemed to go well, except I need to remember that reading while standing makes my MS symptoms really act up – vertigo, the shakes, even trouble breathing (!) Reading while sitting seems to not bring these on, which my neurologist explained was because trying to keep your balance when you have brain damage in your brain stem and balance center takes quite a bit of work, so the other stuff gets a little iffy while you’re doing it. A reminder to me that I need to ask for a chair at readings from now on. I don’t want to fall on anyone and then get a rumor started that I’m a drunk or something. (I can’t even drink so that would be a very unfair rumor!)
MS Energy Conservation Lession #212
I got to see my friend Natasha Moni read at Poets in the Park, as well as the new Washington state Poet Laureate Claudia Luna and Jack Straw alums. I wish I could have stayed longer, and done more socializing, but even that three hours and a half made me super shaky and exhausted. Right. So. Trying to remember to keep that MS energy meter thing controlled. Energy conservation seems to be a repeated lesson I am not good at learning. Especially in the summer time, because, in case you ever have any friends with MS, it’s a struggle because heat, sun and humidity all increase MS symptoms. Which I remember because, that’s right, this is exactly the time last year I was in the hospital and I couldn’t walk, talk, or swallow. So at least I’m better than that, but management is still something I have to continuously remember.
So today I am taking it easy, resting in an air conditioned room, and quietly reading and writing – not even watching any television. Staying cool and quiet seems to help the MS symptoms recede a bit. It’s really like a miniature lesson in life balance that becomes super annoying really quickly. LOL. I have a meditation app on my phone now (no eye rolling) and practice things like breathing and balance (the literal kind) on these down days, too. Oh and sip things like watermelon juice and take extra vitamins. Man. If I didn’t get to visit with you at the festival, I’m sorry, and please feel free to shoot me an e-mail. I’m much better one on one these days anyway! I’m pretty sure I’m behind on some paperwork (backed up grant paperwork, e-mails, blurbs, and etc) so if I owe you something, please remind me. I’m just a little slower at getting things done these days, and I guess that’s the new normal, especially in summer. The forced slow-down does give you something, I’ll give you that – I pay much more attention to little things like the garden and my birds and the texture of a piece of clothing or the taste of something as simple as juice. You check in with yourself and your body more, too – am I cold or hot? Am I thirsty? Do I need to nap? It’s like advanced accelerated AP self-care but instead of grades you just get zapped with a million symptoms if you fail. I bet a lot of people with a chronic illness feel this way – if I don’t do everything carefully, slowly and meaningfully, my body will spiral into some kind of terrible disaster zone. Anyway, if you’re out there reading this, I feel you. I’m going through the same things. We have to adjust our expectations, the pace of our lives, even the breadth of our ambitions to make money, be successful, be a great friend/spouse/etc. We have to accept the lessons without fighting against them every day. It’s tough. It’s revision on steroids, revising your life to just the simplest, most necessary things. Sometimes I want to be able to do things like a poetry festival appearance, but I have to remember that before and after, I’ll need a ton of rest. Resist, resilience, revise, refresh, rest.





























Jeannine Hall Gailey served as the second Poet Laureate of Redmond, Washington and the author of Becoming the Villainess, She Returns to the Floating World, Unexplained Fevers, The Robot Scientist’s Daughter, and winner of the Moon City Press Book Prize and SFPA’s Elgin Award, Field Guide to the End of the World. Her latest, Flare, Corona from BOA Editions, was a finalist for the Washington State Book Award. She’s also the author of PR for Poets, a Guidebook to Publicity and Marketing. Her work has been featured on NPR’s The Writer’s Almanac, Verse Daily and The Year’s Best Fantasy and Horror. Her poems have appeared in The American Poetry Review, Poetry, and JAMA.


