A Rough Week, Harvest Festivals and Pumpkin Patches, and Poets Managing Good and Bad News
- At October 07, 2018
- By Jeannine Gailey
- In Blog
4
A Rough Week…
This week was rough for a lot of us. As an MS patient, I try to schedule things that take me out of a toxic news cycle or feelings of rage that make me happy. October is usually a favorite time of the year for me, although it signals the beginning of the long Seattle slog of seemingly endless rainy nights that lasts til…June. But it is a good time for books and restoration. This week, I made hot chocolate and cranberry apple cider, pumpkin bread, chicken, cranberry and avocado sandwiches (a Thanksgiving memory for me – eating these wraps with leftover turkey?) – and made sure to stop by a pumpkin farm, the local farm stand, and Molbak’s Harvest Festival. I’m still recovering from the month of being sick, so I can only do a little walking and activity before I have to get into bed and watch an Agatha Christie marathon (huge recommend for the BBC’s And Then There Were None mini-series, and for a noir satire, A Simple Favor at the movie theater) or read and write. But I’m physically recovering, bit by bit. Emotionally recovering, too, from a wrenching week. I had to work on recovering physically and emotionally.
Harvest Festivals and Pumpkin Patches
Yesterday we had a small window on sunshine so we went to this giant farm in the middle of the rural outskirts, horse farms and corn mazes. It always reminds me of my childhood in Tennessee. We came home with fresh corn, gigantic Pizazz apples, kettle corn and pumpkin butter, as well as some beautiful squash.
The high temp was 55 yesterday, which is kind of my favorite temperature. There cute kids and puppies running around, which along with the fresh air was sort of a tonic against the terrible sound of men’s laughter and celebration (with beer, terrible taste) at rape victims and women’s pain (A reminder kids: register to vote now and vote for women and get rid of these old hate-filled GOP men who want to preserve their right to rape! Vote out rapists and rape apologists. You can make a difference! Also give to charities for women domestic abuse victims and rape victims.)
- fuzzy sunflowers
- Plethora of Pumpkins
- Glenn and I pose with a hundred-year-old farm wagon and pumpkins
Managing Good and Bad News
I had some good news this week about my PR for Poets book but the buzz of the good news was hard to celebrate with all the terrible things happening in the news and the slowness of my recovery (always slow with MS, way slower than I like.) Then I got my royalty statement from Moon City Books for Field Guide to the End of the World (thanks, everyone who taught and bought the book) which was a nice boost too. Then I did some research on the new MS drug they want to put me on – Aubagio and that was terrifying.
And I watched five minutes of news recaps which was equally horrifying. It’s not good for the immune system to dwell on the absolutely horrifying things happening in our country (and I went on a little unfriending spree on Facebook because I’m not actually going to be friends with anyone who says hateful things about rape victims and positive things about rapists. (Remember who voted how in 2020, kids! Remember who laughed at Dr. Ford’s pain at Trump’s rally and fist-bumped getting an attempted rapist onto the Supreme Court.) I wrote a really angry poem but I realized I already have a book about what being a rape victim – besides the horrifying physical pain, there’s the mental and psychological damage that lasts…forever – Becoming the Villainess. It’s about how women in every society from ancient Greece to modern America can only choose between the roles of victim (pretty princess) and the villainess (evil witch) and that the rage and brokenness that results from sexual assault has repercussions.
By the way, you will never be “nice” enough to protect yourself from the men that want to violate you without any consequences. So, maybe stop being nice. The men in charge right now definitely don’t deserve nice. Anyone who victim-blames doesn’t deserve nice, either. My nice energy will be reserved for the victims, not the perpetrators.
Friday was a rainfest so we retreated to our local gardening center (Mobak’s) to celebrate the Harvest Festival and also goof around their Harvest Festival photo ops. I listened to the rain on the greenhouse roof and looked at flowers and then we came home and planted 40 daffodil and tulips and hyacinths bulbs. A sign of hope. I thought, we can make the world a slightly better place – we can donate money and vote and be kind to those that deserve it and we can plant growing things and adopt animals and believe women and we can meet and talk about ways to make things better. It is awfully hard to not lose hope. I am a creative type so doing creative things and being out with plants is a way for me to not lose my mind. Go do something that brings you joy and then take a step, then another step. I am counting my steps.
- Northwest Camping scene
- Christmas is coming
- Molbak’s Harvest Festival
Margaret Atwood and Virginia Woolf during a Tough Week, Healing and the Last Fall Flowers, and Poems of Resistance
- At September 30, 2018
- By Jeannine Gailey
- In Blog
2
Getting a Fix of Margaret Atwood and Virginia Woolf During a Very Tough Week
If you’re a woman, or a rape survivor, you probably had, like me, a very tough week. It’s hard to watch rape victims who bravely come forward against powerful (and terrible) men be jeered, or things being said like “it’s no big deal” and “boys will be boys.” Infuriating to those who have had that happen to us.
That was on top of the fact that I’m still recovering from a month of MS illness, still getting my legs literally back under me again, starting to eat solid food, coaching myself in swallowing, in catching a ball, in using a cane.
So to keep my sanity, as I was recovering, I decided to read A Writer’s Diary by Virginia Woolf and signed up for a Masterclass on writing with Margaret Atwood, and started watching Netflix’s Alias Grace at the same time. Woolf is tough and unemotional in her journals – quite a departure from my last journal/letters of Sylvia Plath – she mainly gives an account of her walks, what she’s reading and what she thinks of it (she can be quite a snippy critic), some thoughts on feminism and literary notes about what she’s writing, stress about deadlines and money. The last bit – right before her suicide – she mostly talks about the bombings on London in a remarkable chipper tone (I want to live! she says over and over in these pages) even after one of her houses is destroyed by a bomb, while the countryside around her is showing signs of destruction, while Germany is threatening in invade. She talked about wanting to live, but then a few days later, she’s dead. Woolf was a driven writer, ambitious and sharp, an intellectual aiming to change the culture. Like Plath, deeply flawed, and though she was much older than Plath when she took her life, it’s almost incomprehensible, even when you know it’s coming.
On the other hand, the bracing wisdoms of Margaret Atwood – also intellectual and very sharp – in her Masterclass (about $90, a bargain I think, which includes teaching video modules, pdf worksheets, and outside resources like Lorrie Moore’s book review of one of Margaret’s books and an hour long panel on speculative writing) gave me inspiration, homework, real insight into her own rewriting of her books and her own journey to becoming a writer, feminism, speculative writing – I’m not done with all the modules yet and I’ve already written a short story (very rare for me) and two poems as part of my homework. If anyone could be an antidote to this week’s terrible misogyny by men in power, it’s Margaret. I’ve read all her books, but her descriptions of rewriting Alias Grace inspired me to watch Netflix’s version of the story, which I’ve found more subtle and also, more hopeful than Handmaid’s Tale.
Healing in late September and Finding Moments of Joy
One tactic I’ve taken to inspiring me to recover my walking muscles has been taking short trips around to some of our beautiful Woodinville locals and a visit to Seattle’s Japanese Gardens to see if any leaves were changing yet. I can still get exhausted even with short walks so I have to plan just a little bit every day.
There’s something so moving about the last flowers blooming in September, and the turning golden sunlight of this fall month, that makes September my second favorite month after April. The sunflowers and dahlias, the brave front of the last fuchsias full of hummingbirds and frantic bees. I think it’s important to fill your eyes with something beautiful, and give your body some inspiring surroundings while they are repairing. I can’t prove this does anything, but it seems better than most medicines.
- Glenn and I taking in the Japanese Gardens
- Fall leaves, blue ski
- Pumpkin patch, Mt Rainier, scarecrow and sunflowers
- Sunflowers
- Peacock sighting
Speaking of Resistance…Some Poems
I was also thinking about ways to change our culture, a culture that doesn’t trust or believe women or treat their bodies as worth protecting, that privileges the words of men over women even when the woman is more qualified, more educated, and more honest. A culture that tells women that rape is normal and no big deal. A culture where the highest places in government (Supreme Court, Congress, Presidency) can be occupied by unapologetic sexual predators and lots of people are okay with that, or can’t be bothered to vote them out.
I am a writer, so most of what I can do involved, well, writing. Here is a poem I started writing almost 20 years ago, “Remembering Philomel,” when I was 26. It can be found in my first book, Becoming the Villainess. It’s about not only the horrible attitudes towards women who tell their stories (Ovid, an unnamed creative writing professor) but also how my rape at six changed my life, and how the story of Philomel and Procne is a story that is just as familiar today as it ever was.
And two more poems that I hope help you. One is from the same book, “Okay Ophelia.” I encourage you all to take positive action in the face of hate and misogyny and injustice. Buy a book or painting by a woman, donate to a women’s charity, decide to vote for a woman in November, listen to a woman and believe her. Promote a woman. Hire a woman. The only way our culture changes is if we change it.
The other is a newer poem called “Resistance.”
In the Recovery Zone, and How to Avoid Despair with Illness (and Writing)
- At September 23, 2018
- By Jeannine Gailey
- In Blog
4
In the Recovery Zone
Happy fall! To the left is a shot from a local winery of a rose growing in a most unlikely way through an evergreen shrub. I thought it was a good metaphor for something – stubbornness and beauty in unusual places?
So, now I’ve been home a few days from the hospital, still taking large doses of medication, and just in the last day or so have restarted solid food. I am still in a gentle phase called “recovery” in which I must rest more than I like, not overdo, and try to ramp back up and get back into helpful routines. This morning to help regain my equilibrium I sang, opened the blackout shades and curtains to watch the sunrise, read Psalm 73 (a good one if you’ve been recently in misfortune) and tried to meditate a little and see if I could learn anything from the last terrible month.
How to Avoid Despair with Illness (and Writing)
One day home from the hospital, even though I was still on a clear-liquid diet and my legs awfully shaky, I wanted to go visit a local garden (the pic at left is at Willows Lodge gardens) and spend some time outside. I’d been inside – not just in the hospital, but being so sick for a month I basically wasn’t leaving the bed except to be violently ill and go back and forth to docs and ERs – for almost a month, so it was important to me to feel the late September sunlight, to see growing things, to breathe around some flowers, so give my eyes some beauty and my lungs some fresh air. For a month I saw specialists, ER docs, and others who told me I was a mystery, they didn’t know how to help me, and they really couldn’t. I continued to get sicker and sicker until I was admitted to the hospital and given a shotgun approach – everything from heavy duty steroids to nutrient IVs to mega-doses of anti-nausea drugs – and something finally triggered my body to start to recover. Last year around this time I was also in the hospital for similar symptoms, and they diagnosed me with MS. This year they did tons of tests, and now they know I have MS, but not why I have the symptoms I do or how to control them. This is very frightening, of course. But I didn’t give up, and I didn’t let the doctors give up. A lot of them shrugged their shoulders at me over the past month – infuriating when you’re looking for help – but eventually I actually got help. So one lesson: Do not give up and do not stop asking for help. Second lesson: Remind yourself (and your body) of the good things in life, the beauty, the reasons you want to keep being alive.
- Willows Lodge garden, Late September
- Glenn and I at Willows Herbfarm garden
- I aspire to have a garden like this someday
Most of my family lives out of state, so Glenn was really my only support system during this really horrible month. Fortunately he is a wonderful caretaker. And I want to not just be his caretaking burden, but I want to still be in a relationship too, you know, make sure he’s okay, he’s getting to have some rest and some fun. If you have people who are taking care of you, try to take care of them too. So we had a little mini-date, to go see some local glass artist (Tacoma Glassblowing Studios traveling NW Glass Pumpkin Patch) and Glenn got to sample local food vendors and a band played and we felt almost normal again. Then I had to come home, drink broth and sleep. So, not totally normal. But close. A reasonable facsimile thereof.
- Glenn and I pose in a Molbak’s display
- blue and green glass pumpkins from the NW Glass Pumpkin Patch
- glass pumpkin and sunflowers
- We pose with more glass pumpkins
How Not to Despair in Your Writing Life
This was reminding me of the writing life too. The writing life can feel like these awful stretches of rejection, of non-recognition, of not getting the grants or jobs you feel you’ve got a shot at. Why are you even writing when it feels like no one cares or pays attention? The same frustration you can feel in the doctor’s office in a sea of shrugs. Why do we do this? Why do we bother? But then an editor will call with an acceptance and some perceptive advice or you’ll get someone, somewhere who cares and shows it and it will make your month. It can feel like a terrible slog, most of the time, reading and writing and practicing in a vacuum. I think a lot of women writers, especially, tend to over-give and over-volunteer and forget to take time for themselves (I managed to get myself in some trouble this month because while I was in the hospital, I had an editing project and a contest I’d promised to judge – and I was absolutely out of my mind – intractable brain problems tend to do this – and not able to do jack. Sometimes that happens. We have to forgive ourselves and also, maybe don’t commit to too many projects in the first place.) There was a conversation today on Twitter about how many male “geniuses” are only where they are because of the support of the women around them – unpaid editors, caretakers, supporters. Treat yourself like your time is limited. Because, not to be too grave here, but it is.
So I have to think of some of the same “survival” skills that apply to recovering from illness and apply them to the writing life. Say you haven’t been writing, you haven’t been feeling like you’re doing enough to promote your work, you don’t feel like you have a support network for your writing, etc. Be kind to yourself – relax and give yourself downtime. Be kind to your support system. Subscribe to journals that support you. Write a thank-you note. Read a book just for fun, not for self-improvement or critique, but fun. And if a bunch of editors are virtually shrugging their shoulders at your work, just like with doctors, keep going until you find the editor that gets you. Remind yourself why you are writing in the first place, spend time with what is beautiful, and try to give yourself some joy.
How to Get Your Book Reviewed, Living in Hospitals, and Hoping for Better
- At September 19, 2018
- By Jeannine Gailey
- In Blog
8
Living in Hospitals, Missing My Muse
Sorry to have been absent so much, my friends. Unfortunately, I was recently (up til the last few hours) in the hospital. And I’ve been in the hospital more than out in the last few weeks. Short version: can’t seem to keep down food, doctors don’t know if it’s because of brain problems or GI problems, but it’s certainly gotten old in a hurry. I have talked more to doctors lately than my muse, and I have more needle marks in my arms from the last month than, well, seems entirely wholesome. I have missed thinking about you, about poetry, about the beauties of nature (although the view of trees from my hospital did help.)
I am hopeful that after this last hospitalization I will be at least on track to being better and able to do more that I love. I love this season, and I have already missed too much of Seattle’s shy and brief fall beauties. Not to mention writing, editing, and reading time. Please, I know you all have troubles, but if you have some spare prayers or good wishes, send them my way.
How to Get Your Poetry Book Reviewed
While I was away, Trish Hopkinson kindly hosted a blog post of mine about the most frequently asked question I get at presentation on PR for Poets, and that is, “How do I get my poetry book reviewed?”
A challenging topic to answer in just a few bon mots in a presentation, so here is a longer form answer; I hope it is helpful to you, but if you have any extra advice, please leave a comment at her blog or here at mine! I’m always learning and certainly could always use more reviews of my books, LOL.
Hoping for Better
Yes, I’m hoping to turn a corner on the health front, but until then, I may be a little slower getting back to people (lots of doctor appointments, and the drugs I’m on right now to contain nausea don’t exactly make me the sharpest.) September is a wonderful time to read and discover poetry, to write, and to celebrate poetry by going out to readings, book launches, etc. I miss going to bookstores and readings. I’m sorry I’ve been so isolated lately. I do hope you all forgive me if I continue to be away more than here for a while. When you see me next, hopefully my brain and internal systems will be functioning more normally. Halloween is around the corner, which is one of Glenn’s favorite holidays. He’s been so great at taking care of me while I’ve been barely humanish and a great deal of trouble, so I hope to make it as festive as possible around here. There’s my raven headband for luck!
Grappling with Middle Age and Being a Mid-Career Poet
- At August 30, 2018
- By Jeannine Gailey
- In Blog
6
Grappling with Middle Age and Mid-Career Poets
Oof, boy it’s been a week for poetry news – more scandal (another dude who started two MFA programs caught in sexual abuse going back to the seventies), more controversy (white guys saying some stuff about race they probably shouldn’t, mostly, in places like The Sun and The Writer’s Chronicle) and then like a thousand announcements of gigantic fellowships/awards/prizes going to very young poets. Yeah. If that doesn’t make you want to get off Facebook and go write instead…
I posted something on Facebook about the dearth of opportunities for poets after that first or second book prize, the lack of prestige presses reading open submissions or anything but first book contest entries, a whole poetry system that seems to spin on publicizing the young and the new. I guess they are more photogenic! LOL. Not to be bitter and old, but you know, great poets aren’t always the most photogenic or the hippest. Sometimes they are (gasp) over 40! They don’t always go to Iowa or live in NYC! Sigh.
Anyway, the post generated so many responses (some heated) that I had to hide the thread, but it was interesting to read the variety of responses – older poets saying that had given up on “the po biz” or publishing even one book altogether, older poets saying they wanted to encourage younger poets but also wanted more outlets for poets their age. Some folks pointing out that this could be a problem of scarcity – a feeling that the majority of scarce energy, time, money, publicity was going only to some poets, leaving the rest empty-handed. The weird thing is, there’s less scarcity in poetry than usual – poetry books, everbody’s telling us, are selling more than ever. Or “how dare you? Don’t you want to encourage young poets?” (I do!) Or “You should only write for the joy of writing the poem.” (Yes, to a point…but I also write to share that with others…)
At the same time this week, I have been coming to terms with the fact that I am now squarely middle-aged. 45! There’s no arguing with it. Last year I was so concerned that I wasn’t going to live to see another year I didn’t have much energy to think about it, but now that I’ve lived another year, suddenly I’m faced with the smaller problems of aging (not just the full-blown scariness of cancer and MS). Bunions, teeth that have started to crumble under years of jaw-clenching stress, a thyroid gone wonky, weight gain. Little stuff, but stuff nonetheless. Yay! This is the glamorous poet life you want to read about, right?
I was joking with my mother asking what women were supposed to do for mid-life crises. I don’t really want a convertible or a new, younger husband, plastic surgery, or a year off to explore Thailand. Hrmph. Also, I don’t really have the money for most of that stuff (and I’m pretty happy with my current husband). I don’t want to try the newest miracle diet. I’ve already dyed my hair pink a couple of times (and probably will again). The picture at the top of the post is a picture of a nearby garden in late August, which has its own kind of over-ripe, aging beauty. A reminder that there is a beauty to every season. (Also, August has been showing up a lot in my poems lately.)
I was watching that old (and not great) Sylvia Plath movie with Gwyneth and James Bond and Dumbledore. When her ambition and life goals got thwarted, she often attempted suicide (and of course, she was struggling with mental illness that was poorly understood and treated at that time.) I understand the frustration but not the death wish. (And I wish the movie had focused less on her jealousy and mental illness and more on her weird cheeriness, humor, all-Americanism, her ambition but also her meanness – anyway, she was way more multi-dimensional than that movie gave her credit for.) But I do wonder – is there a point at which thirty year old Plath thought – I’m too old to make it now in poetry? I’m sure that there was. And that was…what, fifty years ago now? Have things changed for a middle-aged female poet much? I wonder as I contemplate sending out my sixth poetry manuscript – am I too old to make it now in poetry? (Of course, “make it” has a variable, interpretable meaning – I think Sylvia, who by thirty had already published one book of poetry to very few reviews and had just had her thinly veiled autobiographical novel, The Bell Jar, published – was pretty successful, since I didn’t publish a book til I was 32, and she had been winning fellowships and prizes since she was 20. Some people might look at might at me and say, “Hey, you’ve published five books and were just talking about your acceptances in the last post!” Yes, I’m thankful for the good things – the reviews and people teaching my book, every acceptance, the presses that too a chance on me. Success is relative, and one thing Sylvia and I might have in common is that terrible sin for a female writer: ambition.)
I wrote an essay a while back for The Rumpus called “the Amazing Disappearing Woman Writer,” talking about Ellen Bass’s rise to fame in her early years, her disappearance from the map of mainstream poetry, and a bit of a late triumphal return. That seems to be a pattern – people seem more willing to embrace a woman poet when she is young and sexy, forget about her in middle age, and cheer her again when (perhaps) she is seen as less of a threat, more of a mother figure, in her later years? It takes a lot of courage and persistence and work to try to stay in the spotlight. The ones that stay there, they are fighting to stay there. Or other people are fighting for them. Anyway, this is why you may notice that my book reviews often focus on women, and women in middle age particularly, ones that I don’t feel have had enough written about them. Some poets get way too much review space, and others way too little, and I’ll do what I can when I have the energy to try to put a spotlight on these women in their middle years.
But there remains the problem – the culture of poetry’s fetishism of young poets. The desire for the new. Instagram poetry could be a great way to reach more people with poetry – or a great way to shallow-up the world of poetry, focusing on the pretty image and the tiny, easily digestible poem. I don’t have the answers. But you might – if you have the power to buy a book of poetry, or reviewing one, think about giving your attention to a poet who might not be the flavor of the month or in the spotlight, but might speak uniquely to you. If you are a publisher or editor, think about your gatekeepers – if they’re all 22, that might be affecting what gets past them, because at 22, you feel 30 is old – and that gives you a different worldview than someone, say, in their fifties. (If they’re all 22 white able-bodied males, you may have even more thinking to do.) Think about diversifying opportunity. After all, Ellen Bass never stopped being a terrific writer – she just dropped off the radar for a while.
Talking Apocalypse, End of Summer, Hospital Trips (and Other Unplanned Trips)
- At August 18, 2018
- By Jeannine Gailey
- In Blog
2
End of Summer
It’s getting to be the end of summer – people are celebrating the last hot days of August. Sending kids back to school, or preparing their own syllabi.
I’m personally looking forward to fewer 90 degree days and less wildfire smoke. Looking forward to feeling more energetic, getting to apple cider and pumpkin farm season. The end of summer here has been rough – worse air quality here than in Beijing last week and this coming week, constant heat and somehow also clouds. The best parts of a Seattle summer – the clear seventy-something days, the blue skies, seeing the water, mountains, and the flowers – are being squelched by this second-year-in-a-row disaster zone of fires in every direction. It certainly feels apocalyptic. And then, when you’re looking of your friend’s pictures on Instagram of various fab vacations, you get the type of trip you don’t plan for.
Hospital Trips (and Other Trips You Don’t Want to Take)
Speaking of disaster zones…sorry I’ve been absent – I’ve been really sick, not even really able to do any reading, or sending out work, which always sucks. I was in the hospital a couple of days ago, giving me flashbacks of last summer, where I had four trips to the hospital during August. That really persistent bug plus the MS just overwhelmed my immune system and I couldn’t really function. Some weird stuff. They’ve found some new problems in my stomach, they want to check me for new brain/spine lesions, and of course, my thyroid/checking in for carcinoid too. I’m doing a little better now (more nausea meds plus a new antibiotic for the bug) but it’s a reminder that I have to appreciate the good days, and find a way not to lose hope during the bad ones. I have so many doctor appointments and tests coming up…sigh. Sometimes I feel I have no identity outside of “weird sick person.” When I’m in a bad spell, sometimes it feels like “normal” will never come back.
Here’s a dahlia from our garden to remind us of (hopefully) better days to come…
Talking Apocalypse
But on the plus side, after having to cancel a reading the day after I got out of the hospital, I took a whole bunch of prescription drugs and set out to conquer the world – two days after.
Brick & Mortar Books in Redmond hosted a panel on apocalypses, including me, YA author (The Last One) Alexandria Oliva, and Gather the Daughters author Jennie Melamed, last night. It was great – a good sized audience, great questions, and the two other authors were wonderful. I was so happy that I turned a corner – I was really nervous I’d have to cancel. It was a nice reminder that I am more than just a sick person or a super mutant patient of a bunch of specialists.
It was also nice to sell some copies of Field Guide to the End of the World, talk to other writers about writing, and talk to an audience about the joys of poetry. Things that remind me of the good parts of being a writer. Today I got an acceptance in my inbox of two poems, which was a nice reminder, too, that it the middle of what feels like an endless stretch of bad, there might be good things waiting. Wishing you a similar promise of good things to come.
- me in the garden before the event – first time I’d put on makeup in over a week!
- Alexandra, Jennie, and me
Making Peace with a Body at Odds with Your Life Goals
- At August 05, 2018
- By Jeannine Gailey
- In Blog
1
When Your Body’s at Odds with Your Life Goals
This last week I haven’t been able to do much, by which I mean, move, shower, or leave the house. I got an infection which triggered my MS symptoms and my body does not want to work. It does not want to eat, sleep, or move around properly. I feel nauseous all the time. I can’t concentrate. My legs give out from under me at random times. I’m so frustrated because, yes, my body is at odds with my life goals.
Friends who have perfect health, good for you. Please enjoy it. Everyone else, what can we do? Yesterday a friend was reading downtown at Open Books, but instead of being there, I was sleeping. It was a perfectly beautiful day outside, which is saying something for Seattle – 75 degrees and sunny. My flowers were blooming. The hot air balloons went up and down in the morning and evening. I was surrounded by beauty. I just couldn’t do anything with it.
How to Accept Your Losses
I’ve always been an A-type, goal-oriented human. The problem with that is when you can’t achieve your goals, do you consider yourself a failure? Do you forgive your body for betraying you? I think the trick is to enjoy and appreciate the moments when you can do things, and the rest of the time, you have to be okay with the fact that your body isn’t going to work all the time. Which is tough. We live in a society that values doing things, not being things. I used to, for instance, earn good money as a tech-writing manager. Not anymore – I’m lucky to break 15K a year as a writer and editor these days. (Just being realistic, people. This was also true when I was working as an adjunct!) Am I worth less as a person because I make less money? I’m still writing. I still send work out to be published, just maybe not as fast. The poet in me says: this downtime is allowable. It does not make you less of a poet. But the A-type, goal-oriented part of me says: what are you even good for these days? It is angry that I’m not able to do even simple things every day – go to a bookstore, or a garden, or hike by a waterfall – that bring me joy. I can’t socialize every day anymore. Those feel like losses to me. I love my friends, my spouse, my garden and my cats, all of whom have put up with me in my new, broken condition – one that is fragile, and somewhat unpredictable. I need to be able to accept my new condition as well.
This has made me think about Emily Dickinson, who was home-bound for most of her adult life. She didn’t get out much, although single women couldn’t do as much in her day even if she had been totally well, which some historians thinks she was not. She did have a fabulous garden and greenhouse (concreted over by the next owners of that property, by the way, to make tennis courts – the shame!) She famously wrote a poem about what might make a life worth living (“If I Can Stop One Heart From Breaking”) so I think she also struggled with, having not attained publication or fame during her lifetime, and not getting married or having a family (women in those days didn’t have much chance of having any type of career) seeing herself as a failure, coming up with coping mechanisms for not being able to achieve her goals. “Victory Comes Late” is one of my favorite of her poems, because it deals with bitterness and loss from the perspective of achieving goals, but late and at a time when it no longer brings a thrill. (Did she foresee her own post-life fame, I wonder?)
Moving Forward
So, how does one move forward with this? I know that I have good days and bad days, and I’ve had a pretty bad, say, month. I know that MS can be worse in the summer, and that has definitely been the case for me. So I have to roll back some of my expectations. It’s beautiful outside, but I’m lucky that I can enjoy some of that from my deck, where I can watch over my flowers and birds (and occasionally, rabbits and deer.) There are a lot of things I’d like to do – take a day trip up to Port Townsend, go downtown more often to see art or poetry readings, or just see the rose garden at the Woodland Park Zoo, or the lavender fields. I miss those things. But I have hope that I’ll have more good days again, that I’ll get this MRI on Tuesday (checking my brain and spine for more lesions) and see my neurologist and maybe those will give me some answers. I pray (and also donate money that support this cause) that they are going to find an MS cure soon. They are working on new drugs – because most of the ones that exist, sadly, don’t work very well (40 percent or less effectiveness, which is not great) or have terrible side effects – like death, or cancer. I hope they get some new drugs soon that help people like me that struggle to do their everyday things. I’m working hard to find a new primary care doc that doesn’t just blow me off or get overwhelmed by my complexity. In the meantime – I will continue to do the things I can. I will try to forgive my body on the days when it’s hard work just getting out of bed. I still have goals – writing, submitting, getting out in the world – even trying to edit or review books when I can – I just have to accept that some of the time, my goals have to be smaller and more manageable, or not depend on the “zing” of accomplishment to feel okay about my life. I have to be okay with my hummingbirds seen from a window, the undependable nature of flowers, blooming or getting eaten by deer, variously. The hot air balloons a symbol in the distance of lightness and movement, of hope.