Delay on the Nuclear Test, some poetry news and a Few Words about Luck

Thank you again for all your continued good thoughts and prayers. Had to delay my scheduled nuclear SPECT test from last Friday to this Wednesday because they wouldn’t let me in for the test at the nuclear lab with a high fever and flu-like symptoms because they have so many immunocompromised patients (can’t blame them, although I literally caught it AT the Seattle Cancer Care Alliance Blood Lab, which last Monday was crowded and full of people coughing without covering their mouths) but it has prolonged the suspense over this test a few extra days. Still won’t know whether or not I need to schedule a liver biopsy til after this test. But it’s been okay – I rested up from the flu, read up a little more on the test, the types of benign growths it might reveal, and even treatment options for said benign growths, just for good measure. It was nice to think about options OTHER than cancer. I think I feel a little less scared. In the meantime, I’ve received real mail, flowers, and even a pink unicorn in the mail from friends – friends that I realized can be a real boost when dealing with serious life crises like, say, a cancer scare. In a way, this unwelcome health discovery has also revealed how lucky I am in my friends and even acquaintances – that a world that can seem indifferent can also be surprisingly comforting. In two days, hopefully I’ll have more news for you – good news, I’m hoping!

After a week of getting three rejections, I also had a little bit of good news about The Robot Scientist’s Daughter – that it is a finalist for the Eric Hoffer Montaigne Medal for thought-provoking books from small or indie publishers.

I’ve been writing poems lately about the nature of luck – good luck charms, bad luck omens, the thing we think of as lucky and unlucky. Getting, for instance, the news that you might have metastasized cancer at 42 might be considered bad luck – but only having some benign growths that might require some surgery would really only be average or mildly bad luck. I’ve had good luck in some things – not health stuff, maybe, but in my marriage, my writing life, my friends.

Here are two poems I’ve written in the last few weeks. Maybe not my best work, so these poems will probably go “poof” in the next few days. Think good thoughts for me this Wednesday (hopefully this time I will be well enough to actually get the SPECT test!)

*POOF*

Nuclear Tests, Finding Spring, and Looking for Cover Art for Field Guide to the End of the World

Not THAT kind of nuclear test. I’m going in for a nuclear test – called a SPECT test – this Friday to get more info about what’s going on with the liver. This test might eliminate the need for a liver biopsy, because it allows them to rule in or out a certain kind of benign growth – but it might not. I’m hoping it does! Because I’ve had allergic reactions to CTscan contrast and MRI contrast, they’re pre-medicating me before putting in the tracer – a radioactive element with a short half-life called technetium. So wish me no allergic reactions and a good result!

I’ve been a little down, still, and a little anxious, so went looking for some signs of spring – outside the little jonquils springing up in my back yard. I saw a red-headed woodpecker about three feet overhead as I went out of my house (hopefully a good luck sign) and after driving fifteen minutes towards Lake Washington, started to see flowers – magnolias about to go, quince bushes blooming, rhodies and redbud and other trees. It was a bright blue February day yesterday, almost up to 60. Even if it’s supposed to start raining again tomorrow, a lovely reminder that spring is close.

: Plum blossom

: Rhododendrons and plum trees

I’ve been having anxiety dreams about Friday’s test (among other things,) but I’ve been distracted – in a positive way – by trying to find a good candidate for cover art for my upcoming book with Moon City Press, Field Guide to the End of the World. I’ve been prowling art sites and the internet for things that might work well for the book – collages, apocalyptic landscapes, vintage Field Guide graphics. This book has been tougher than the others to find exactly the right art for. I’m also trying to place the last few unpublished poems from the book and get blurbs. Getting back to doing a little bit of normal life stuff, which has helped my state of mind a bit.

Had to contend with some bad family news this week, and of course the kind of regular bad news that scrolls across your phone – the Dow’s plunges, political news, the um, record terrible-for-buyers real estate market in Seattle – but trying to stay upbeat. That’s the thing about spring – especially out here as the daylight is now extending, finally, up to 5:30 PM as opposed to 4 PM – it’s easy to feel the sun and see the water and mountains stretching out, and remember so many of the good things about my life.

Lost Time, Updates on the Rollercoaster Ride, and Emily Dickinson

Time has done some weird stuff lately. In between rushed medical tests, phone consults and e-mail consults with doctors, I’ve been losing hours – not reading, writing, responding to e-mails, but just – lost. I’ll chalk this up to stress, this misspent time. I’ve appreciated all those who have left notes, visited with me, written e-mails and called, those who sent flowers and cheerful messages in my last two stressful weeks. I remember that I am lucky to have quite a community, not only in person but online. You guys really do make a difference, so thank you.

I apologize for not giving updates and answers. Besides a nasty case of stomach flu I caught in between doctor appointments, after various multi-doctor get-togethers, they’ve decided to run some more tests, so I’m going in for some blood work first thing Monday morning, and then maybe a radioactive trace test to see if the liver growths might be some kind of benign solid growth …which may be good news or bad news or just medium or tedious. I am hoping for good to medium-tedious news, an outcome that won’t result in anything scary (or any more tests.) Still hoping to dodge the bullet of possible cancer or even dodge the liver biopsy, if it is possible.

During this time, several of my family members and close friends are facing their own serious health crises with various levels of grace, terror, sadness, anger, frustration. It is more terrifying watching loved ones struggle than it is to struggle yourself, as I realized a few months ago watching Glenn in the hospital. I always wish there was more I could do.

You can’t always protect yourself from danger, or bad news. We can’t ignore pain, or illness, or losing people we love. We are vulnerable and mortal. I read a lot of Emily Dickinson this week, and I realized – I don’t think she was very scared of death. “Because I could not stop for death” is almost a cheerful poem, while “I heard a fly buzz – when I died” imagines, in a sort of disembodied way, the tiny mundane fly on the other side of her own dying moments. I mean, she’s pretty gangster – she has the opposite of fear, she has curiosity. Definitely a therapeutic read during a stressful time.

Here’s a little XKCD comic for a lighter-hearted look at her poem:

We just lost two courageous and terrific writers, Harper Lee and Umberto Eco. It’s a good time to re-read Six Walks in Fictional Woods, or Foucault’s Pendulum, perhaps. “To survive, we must tell stories,” said Eco. It made me think: What kind of stories are we telling – ourselves, others, in our work? What stories will we leave behind?

The Roller-Coaster Ride of Cancer Tests, Bucket Lists, and Stages of Grief

Happy post-Valentine’s Day, everyone. I’ve been dealing with some heavy news, and not sure whether to or how to share it. This post may disappear later, or parts of it will. For now, for anyone that’s been following my health scare from the last post, here’s the follow-up.

After the CT scan in the emergency room about ten days ago, things went from bad to worse. The CT scan showed 4-5 lesions suspicious for metastasis in my liver. The follow-up MRI a few days ago, which is supposed to be a more accurate test, said the news was even worse than we expected – 10-15 liver tumors, some of them 2.3 cm/2 cm (the larger the tumor, the worse the news, and the more tumors, the worse the news) once again, the report said, “suspicious for metastasis.” I was stunned. I think I’d honestly believed the first test was a fluke, but this report said no, it was no fluke, and yes, something seriously wrong was going on with my body. I got calls from my gastroenterologist and my hematologist – they wanted to go ahead with a liver biopsy, super dangerous for someone like me with a rare bleeding disorder, requiring not only an overnight stay in the hospital with the oversight of my hematologist – a leading specialist in weird bleeding disorders and rare cancer types – but taking some experimental drugs for my bleeding disorder I’ve never tried before, plus maybe blood plasma infusions. I want to slow down, make educated judgements, maybe get a second opinion. I still feel some paralysis when it comes to next steps. Maybe I don’t want any more bad news, and I certainly don’t want to die accidentally trying to get more bad news from a biopsy.

So that’s where I’ve been the last few days, trying to make sense scientifically and spiritually. A friend of mine in medical school has been calling regularly to help make sense of my test reports and doctor’s comments. My neurologist sent me a link to all the things that aren’t cancer that liver tumors can be, telling me she wished me the best and reminding me of the scare I had when they found the mysterious five lesions in my brain. People here on the blog and on Facebook have been as supportive as they possibly could be. My little brother came over the day I got the MRI news to help a somewhat shell-shocked Glenn and I deal with the news. It’s possible what’s showing up on the scans is a kind of fast-moving metastasized cancer – or something serious but other than cancer, like a serious infection or autoimmune problem that would still not be great news, especially for my liver. And I can’t find out exactly what’s going on without doing a test I don’t want to do next.

I started thinking about bucket lists – you know, the things you do if you found out you only had x amount of time to live. Most people think of exotic trips, jumping out of airplanes. I thought of the things I’d really want to do if I had very little time – spend time with friends and family, maybe make time to be with more animals (if someone could deliver a bunch of white fluffy kittens and miniature ponies to my doorstep I’d be much obliged), read, be in the woods. I’ve really, I realized, by 42, achieved a lot of things I’d always wanted – I always wanted to be a poet, and by the end of this year I’ll have five books of poetry out. I married a wonderful guy and this year we’ll have been married 22 years. I have pretty good relationships with my parents and my three brothers. I’m not going to leave behind small children. I don’t have that many regrets. I live in a beautiful place that I wouldn’t really want to leave – I’ve been to Paris and the South of France, I lived in Napa and Carlsbad, on islands like Bainbridge Island and a seaside resort town called Port Townsend – but I’m happy where I am right now. My bucket list wouldn’t include a lot of changes to the life I’m living right now (well, sans painful medical tests and doctor and dentist visits. I’d probably lose those. And maybe the house shopping – did I mention we’re still doing that? And taxes. I’m still worried about them.)

I want to go to the AWP LA, still. The thought of beautiful sunny beaches AND spending time with friends across the country is very appealing right now, I can tell you. Glenn’s Valentine’s present to me this year was a new piece of carry-on luggage (in pink! Valentine’s-y!) – a symbol of hope, of reassurance that I will still be doing things I want to do. I was joking I had gone through all the stages of grief with this bad and unexpected news – anger, denial, bargaining, depression and shopping…that’s a little humor, folks. I know the last one is acceptance. I just maybe haven’t quite made it there yet. I keep hearing the refrain from Liz Phair’s “Polyester Bride:” “He keeps telling me you’ve, you’ve got time/ but I don’t believe him/ you’ve got time…”

I’ve been reading the Bible with renewed interest (I don’t talk about it much here, but I am a Christian, I believe in an afterlife and maybe even a pre-life, the idea that our souls live after our bodies somewhere else, and probably lived somewhere else cool before we were born). I’ve been thinking about wills and living wills, graveyards and tombstones. I’m making plans I didn’t want to have to make for years. I’ve been thinking about the time I spent working with terminal children at Cincinnati’s Children’s Hospital all those years ago, how they cheerfully confront death, testing, and terribly painful treatments like champions, way better than the adults at the other hospitals I volunteered at. I want to be like those kids – taking the good stuff – playing with stuffed animals, coloring – in stride with equal grace as bone marrow transplants, chemo, and losing their hair. They were not afraid, and they were all pretty much, no matter what religion, convinced there was a Heaven and they were going to go there. They were, to a kid, unquestioningly brave. There’s a lesson in there somewhere for me.

I still have some scary stuff to face. The doctors don’t have all the answers for me. I may have to face already-metastasized cancer, and if this is something bad going on besides cancer, it’s something fast-moving and bad. Yeah, none of this stuff is wonderful for me to face. It’s not fun. I’m not sure how to handle everything, or process it. The science girl in me is doing lots of reading and research, and the poet part of me is sad I haven’t really been able to write about it yet, turn it into art. The rest of me just wants to hug my husband, my cat, listen to Nirvana, and watch things that make me laugh – old 40’s screwball comedies, Mystery Science 3000, 30 Rock reruns. I want to enjoy the things I can still enjoy. I want the maximum amount out of the life I have left.

When the Universe Delivers a Swift Shift in Perspective

I’ve been absent here due to a bit of a health crisis. The scary kind that catches you unaware, even me, seasoned health-problem pro that I am!

I was feeling crunched, worrying about finishing an essay for the upcoming Horror Writers Association newsletter, an article for Poet’s Market, edits for my PR for Poets book and trying to find blurbs for my upcoming poetry book, Field Guide to the End of the World. I was a little stressed, a little under the weather, trying to balance my writing life and everything else. Ironically, perhaps, I was also working on a talk I was supposed to give this Monday at UW Tacoma on overcoming discouragement and rejection.

But life likes to throw a little curve ball at us once in a while, and that’s what happened this week. Not only was I in the hospital by Wednesday, but I was given unexpected news due to some of the tests.

I know a lot of my friends in their forties, and even thirties, have already been through cancer scares, and I’ve even been though a couple myself. (I remember one doctor telling me when I was twenty: “It’s AIDS, lupus, or cancer. We’ll know on Monday. Have a good weekend!” PS: It was none of those things.) But in doing some tests for some terrible abdominal pain, they found something that might or might not be a serious kind of cancer. Only, they left me waiting in bed, not giving me any of my test results, for hours, which is unusual – in the same hospital a couple of months ago, they’d cheerfully come in to let us know the results of the same tests they’d run on me for Glenn within minutes of getting the tests. The nurse, when I inquired, said the ER doc would come in and give me the test results “after he talked to my doctor on the phone” – and the ER doc wouldn’t look me in the eyes as he gave me my diagnosis and check out information, telling me to follow up with my doctor as soon as possible. When they gave me my printed reports, there were the words from both the doctor and the radiology report: “concerning for metastasis.” I was on both painkillers, allergy and nausea medicines when I received the news, but woke up the next day thinking: Oh my God. What? It made all the things I’d been stressing out about seem puny and unimportant in comparison. I had to cancel a bunch of things as I rested up, barely able to eat or sleep for two days from the continued nausea and pain, intermittently looking up things like “Tumor Marker blood tests” and “what else could explain x (what they saw on the CT scan) besides cancer?”

One of the benefits – yes, benefits – of these kinds of health scares, the kind I’m going through now, is a kind of flipped switch of perspective. I’d been agonizing over rejections and no’s from people I’d asked for blurbs one day, and then the next I was thinking: Have I accomplished what I wanted to with my life? What would I regret not doing? How could I approach the end – if I had to – with grace and verve, like one of my role models who is going through liver cancer right now, still traveling and living like she has all the time in the world. She has not let herself become anything anyone would call a “victim.” But boy, it’s scary stuff, this life. All of us have an expiration date, though it’s easy to forget that. It’s easy not tell people we love them, easy to get mired down in the details of tax receipts and chores and minor complaints. I feel very lucky to have had the good breaks that I’ve had – happy to have some family living around me now, a great supportive husband, happy to have my fifth poetry book coming out this year.

If you had told me at thirteen the good and bad things that were coming, I don’t think I would have done anything differently. My body has certainly been an uncertain vessel, from the time I was in my early twenties – thwarting my attempt at a technology management career that perhaps wasn’t my best destiny anyway – keeping my from traveling to some of the places I’d still like to see – though I’ve made it to Paris three times, I’d still like to see England, Ireland, maybe the South Pacific. But mostly I’ve done the things I wanted to do, with the people I wanted to do them with. If I don’t get to accomplish everything else I had planned, well, I still think I’d be happy with what I’ve done.

Hey, maybe this is nothing, another incidental finding, another scare and nothing more. I hope so. In the meantime, maybe I won’t sweat the rejections, the bill paying, the continual grating annoyances of being alive, as much. Maybe I’ll be moved to be braver with my energy, my heart, and my writing. This feels pretty brave, right now – talking about this in public – and hopefully it might help someone else going through something similar, because, isn’t that why we write in the first place?