Musings on Luck and Cancer; A New Review; a Ploughshares Poetry and Comics Mention

First, some good news! A thank you to Tara Betts for her shout-out to the poems in Becoming the Villainess in her Ploughshares post on the Intersection of Poetry and Comics.

And, a thank you to Galatea Resurrects and Brin Sanford for this new review of The Robot Scientist’s Daughter!

So, I’ve been writing poems—even before this new cancer diagnosis—about luck. I think it’s the beginning of a new manuscript. I’ve been thinking a lot about the way we think about luck, both good and bad. Being in the wrong place at the wrong time, celebrating Bastille Day only to be run down by a terrorist, or having a scan run that incidentally discovers metastasized cancer in your liver on an ER run for stomach flu—we can’t control everything or protect ourselves from even the worst things we can imagine. Cancer was not on my list of things to do, as I may have mentioned in previous posts. But here it is.

The next step for me is a radioactive scan to find out exactly where the cancer has spread to. It also will be a good test for the main used chemo drug for carcinoid syndrome, sandostatin. (Though they are working on even better chemo drugs, sluggishly working their way through the FDA’s non-efficient system of cancer drug approval.) Then it will be a dose of monthly chemo for probably the rest of my life.

My kind of cancer, neuro-endocrine carcinoid tumors, and the associated carcinoid syndrome, is rare, but not too rare, enough to have its own foundation and studies. As a kind of cancer, it’s not curable but not fast-moving, so in a way, lucky, right? And some people with carcinoid syndrome don’t get diagnosed ’til after the autopsy done after they’re dead, so again, it’s “lucky” they found it after the seven or eight years they think it’s been hanging out in my body, causing the strange but sort of common medical symptoms (stomach pains, hives, fatigue, weight gain) that have been resisting regular treatments and confounding doctors. And now I’ll get treatments that will probably help the symptoms, hopefully more than the side-effects of the chemo will hurt me. I have insurance and a supportive husband and at least a couple of doctors who care if I live or die. Lucky, right?

An article from a Johns Hopkins study came out about a year ago that doctors and scientists and journalists alike scrambled to defy because the message was so disturbing. The message was: 2/3 of all cancer cases are caused not by lifestyle or environment or even genes, but by bad luck. (Here’s a quick rundown from The Guardian of the original article.) Well, people were outraged, because the message—that you can’t really dodge cancer by staying thin or exercising or eating right or wearing sunscreen or  living in the right place—is pretty scary when you think about it. It means we don’t have control over our health—often equated with virtue in our all-American health-and-thinness-and-lifestyle obsessed culture. I mean, I’ve been eating organic and mostly whole foods for ten years and gluten-free and dairy-free for about seven of those. Did that help or hurt or do anything at all? Do superfoods just feed your tumors faster or do they help destroy them? (Luckily I have a holistic oncology-support doctor I’m seeing next week to help answer some of these questions!)

I may have some relatives—back farther than my grandparents—who died of my kind of cancer, but didn’t die young. My father, working to help develop what became the CT scan machine at Yale when I was born, was exposed to all kinds of radiation for sure, but he is still pretty healthy at 75. Lucky? I grew up in Oak Ridge, the home of a bunch of odd cancer cases and elevated cases of things like childhood leukemia and thyroid cancer, where I undoubtedly—as you can read in The Robot Scientist’s Daughter—exposed to radioactive elements in the milk, vegetables, and fruit I ate from local sources as a kid from 3-10, including our own garden in an area less than five miles downwind of Oak Ridge National Laboratories.  So, was developing this cancer inevitable, part of my genes and my environmental pollutant exposure? Or was it luck?

It’s a question that probably can’t be answered. The idea that cancer may descend on us out of the blue is very frightening, that there is nothing we can do to avoid it. But I think mortality is sort of like that. We don’t get to choose or control what happens to us. I mean, we can definitely hasten things by, say, smoking meth and racing around ignoring street signs and brandishing guns randomly. (This blog does not endorse or recommend that kind of behavior. Member FDIC.) But in many ways, our ending is out of our control. Whether or not we can make peace with that idea—and we can control a lot, still, of how we respond to things like the de-humanizing world of medical treatment or people’s tendency to avoid people with disabilities or cancer, as if they are catching. or the anxiety and pain provoked by our diseases—and our insistence on being more than just the disease, on living life as engaged as we can be with nature, with other people, with improving not only our own lives but the world around us—like that little kid that started Alex’s Lemonade Stand for childhood cancer victims, a little cancer heroine if ever there was one – is what we can strive for. For now, it’s enough to just walk out in the sunshine and remember the stellar jays and hummingbirds, even the chaos of the new house renovation, are all part of the build and fall of the world around us, part of our own body and soul’s chaotic personal journey through the universe.

In the interest of lightening the mood, please look this clip, especially at 25 seconds in this montage from Community’s “Psychology of Letting Go” episode for Patton Oswalt’s take on the body as “Temple of Doom” and 1 minute in for John Oliver’s pronouncement on the human condition of knowing its own mortality: